For the past years, PSOD has continuously served as the primary coordinating body, advocacy network and support group of patients with rare disorders. PSOD aims to increase the public’s awareness on rare or orphan disorders which are long-standing, life threatening, progressive, disabling conditions that require multidisciplinary care. These conditions affect less than one in every 20,000 individuals.
Psychosocial support, generally, addresses the ongoing psychological and social problems of patients and their families. With this, the workshop aims to facilitate the exchange of experiences and determine the coping mechanisms or “pagdadala” of parents of children with rare disorders. The session was facilitated by Ms. Lyra Versoza, a Chemical Engineering graduate and active Pahinungod volunteer from UP Diliman who pursued her passion with a MA Psychology degree from Ateneo de Manila. She is a seasoned facilitator of psychosocial support activities in several disasters, as well as in the conduct of trainings, retreats and counseling sessions to students, indigenous people and indigent youth.